COVID in BIPOC Communities: What's Happening? Now What?
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In mid-May the Centers for Disease Control
and Prevention declared that fully vaccinated people don't need to wear masks
or “social distance” indoors in most cases. The new guidance has been greeted
as a major milestone on the return to normalcy - and we hope it is. We also
know that just as the COVID-19 crisis didn’t strike communities equally across
lines of race and ethnicity, recovery from the pandemic will be much longer and
harder for some communities, and the children in them, than for others.
Watch this conversation about some of the physical and, especially, the
mental health impacts of the COVID-19 pandemic on Black, Indigenous, and Other
People of Color and communities. Some 15 months in, what underreported
challenges has COVID fueled in vulnerable communities of color? How are the
children in those communities faring? How do we get to a new, healthier
“normal”? As always, we took your comments and questions. Also check out the Action Guide full of related resources!
EmbraceRace: Welcome, everybody. Here
are our guests!
We're really, really delighted to have Dr. Ashley Clawson, an Assistant
Professor of Psychology at Oklahoma State University and a member of the Center
for Pediatric Psychology, the Stephenson Cancer Center and the Health Promotion
Research Center. Dr. Clawson received her PhD in clinical psychology,
specializing in pediatric psychology. Dr. Clawson's laboratory, the Child
and Family Health Promotion Lab is a pediatric psychology lab dedicated to promoting
health equity for all children and families. Ashley, it's great to have you.
We have a second Ashley, Dr. Ashley B. Cole, who is an enrolled
role tribal member of the Citizen Potawatomi Nation of Oklahoma. Dr. Cole
earned her PhD in Clinical Psychology. She is currently an Assistant Professor
in the Department of Psychology at Oklahoma State and an affiliate of the
Health Promotion Research Center and the Stephenson Cancer Center at the
University of Oklahoma Health Sciences Center. Dr. Cole's research examines
health inequities, and health behaviors among American Indian/Alaska Native (AI/AN)
populations. Ashley, welcome. Great to have you.
And we have Cara Nwankwo, who is a third-year clinical
psychology doctoral student at Oklahoma State University specializing in
pediatric psychology. Cara is a graduate student in the Child and Family Health
Promotion Lab, and an active leader in the lab's mission to promote health
equity and reduce health disparities among kids, families, adolescents, and
young adults. Thank you for being here, Cara.
Thank you all. We start where we typically do start, which
is give us some insight each of you.
Ashley
Clawson, give us some insight into what's your personal investment in the work
that you do? How do you come to this work?
Dr. Ashley
Clawson: Absolutely.
And to get started, I'll note my pronouns are she/her. I'm a cisgendered
heterosexual White female. That's such a big question. And even though you told
me ahead of time, here we go. I got my PhD in clinical psychology and
specializing in pediatric psychology, and that might be new to some. For us,
the specialization is supporting kids who have medical conditions, whether it's
asthma or sickle cell disease or cancer or now COVID et cetera, and supporting
their families. And in graduate school, I worked at St. Jude and also attending
graduate school in a city that was predominantly Black and there I was able to
see clear health disparities and again, clinical work and collaborating on
research with Black families and adolescents. And from there, that's where my
passion sort of really, I think blossomed. And then for the rest of my career,
just focused on trying to get more experience in my training with working with
BIPOC families, both clinically and in my research. And that's what I do now.
Oh, and I have a two and a half year old. How could I forget that.
EmbraceRace: Thank you, Ashley.
Ashley Cole,
can you tell us a little of your story?
Dr. Ashley B.
Cole: Sure.
First if it's okay, I'd like to introduce myself in Potawatomi. *Introduces
herself in Potawatomi* So hello, good evening. My name is Ashley Cole. I'm
learning how to speak Potawatomi. So thank you for letting me practice that. I'm,
as Andrew mentioned, an enrolled member of the Citizen Potawatomi Nation. I was
born and raised in Oklahoma. And when I was young, though, my family moved away
from our tribal lands. And so I wasn't really connected with my tribe. I didn't
grow up traditionally. But we moved back when I was a teenager. I started kind
of reconnecting with my tribe and really forming interests in my graduate work.
I did a lot of suicide prevention with tribal populations in Oklahoma. And then
since then I have just sort of broadened to more general health and health
inequities and health behaviors in American Indian and Alaska Native
populations. The project we'll talk about today is both near and dear to my
heart, both personally and professionally.
EmbraceRace: Thank you Ashley.
And Cara, how
do you come to this work?
Cara Nwankwo: Yeah. My name is Cara
Nwankwo, like you mentioned and my pronouns are she and her. I am a biracial
cisgender female. Growing up, I primarily lived in both Black and White
communities. And I remember, I think as early as elementary school, when I
started to notice differences between those communities. And in high school, I
really started to see how these differences impacted mental health and knew
that I wanted to figure out a way to be a part of the solution. And that's when
I came to find psychology, and specifically pediatric psychology, and felt that
it was a perfect avenue to kind of use my God-given talents and passions, and
really be a part of that change. Another huge component is representation. We
know that mental health is still stigmatized in communities of color, and I've
been fortunate enough to have many mentors, women of color in psychology. And I
just want to be that for the next generation. And I think that that's what
drives me to do the work that I do now.
EmbraceRace: Great. Thank you so much.
And you all
launched a study this past summer, six months into COVID, looking at the health
status in particular with BIPOC families. Can you tell us about this study?
Dr. Ashley
Clawson: Absolutely.
When thinking about this project, as we all were noticing and seeing what was
happening with COVID, there are clear disparities that were being shown
across racial lines. In introducing this project, I want to introduce sort of two
things that we think about a lot. And one is a Social-Ecological approach to thinking about kids and
families and how they're doing. And that just means that when thinking about
children's mental health, they don't live in vacuums. Kids live within families
and they are in peer systems, in school systems and live in different
neighborhoods, in different states. And for some of us, we live in the United States.
In the research that we did here and that we do with my lab and in
collaboration with Dr. Cole's lab, we really try to think systemically and
understand what are all the different influences that affect kids and families
across these different levels, and understanding that the different systems
influence kids and how they're doing in their mental health. That's going to
influence parent mental health. And in the same way, parent mental health is
going to influence kids.
And that's true in terms of when we think of
neighborhoods, what neighborhood you're in is going to impact what schools
you're in and that's going to impact how kids are doing. We take this
multilevel sort of approach to understanding all of these influences and also
think about that with kids, we can't take a static picture. We have to
understand kids development across time. We think about life course and
thinking about how early experiences in childhood are going to impact a child's
development across time. And also thinking about intergenerational factors that
contribute to kid and families' well-being, in terms of intergenerational
wealth but also intergenerational trauma and how these factors also have to be
considered when we're thinking about how are kids and families doing now in
COVID. We have to really zoom out and take this broader picture.
The next quick concept I wanted to introduce was the one
that's on the slide here. And the reason we wanted to talk about it now is
because as we learned, yes, there are clear disparities for families. And one
approach for intervention is equality. And that being that everyone gets the
same intervention. Everybody gets a bike. Well, the difficulty with that
approach is (and our goal is optimal health) is when we do an equality
approach, some people aren't even able to get on the bike and otherwise we see
all these barriers where the bike is not meeting people's needs. No one is
really reaching optimal health. What we'll talk about more is an equity
approach where everyone gets a bike. Everybody gets support to reach optimal
health, but it's really more nuanced and more specific and understanding that
all of us have different needs and we need to support the different needs of
kids and families for them to be able to reach optimal health. And on that,
Cara will talk about the study more specifically, but that's just sort of in
general, where we're coming from.
Cara Nwankwo: Like Dr. Clawson
mentioned, we have already had this focus on child and family health,
specifically health disparities, fighting for health equity. And we have a
specific interest in families with children with asthma. And so prior to the
pandemic, we know that generally BIPOC community health outcomes were less than
ideal. And this is due to drivers of health or social determinants of health. And these are really the
environmental and contextual conditions that influence our physical health and
social health and psychological wellbeing. These are the conditions where we
live, where we work, go to school, where we get healthcare, food, resources,
all of that impacts our health. And some families have access to like grade A
conditions and some families don't and that all affects their health.
I know you all did a webinar earlier in the pandemic, really looking at the
rates of COVID within different communities. And we saw pretty early on that
the pandemic was affecting communities of
color differently, where they were having higher rates of infection and mortality.
And we noticed that there was no research specifically focused on understanding
how the pandemic was affecting the mental health and the drivers of mental health
within these communities. And given our lab's focus in asthma, and COVID being
a respiratory virus, we also recognize that the pandemic may have especially
big impacts on BIPOC families, and especially those families who have children
with asthma. And so we decided to launch an online study about a year ago now.
It started June, 2020 where we were really interested in understanding the
changes of the social determinants of health. Perceived changes in income,
parental employment, food security, mental health and medical care during
COVID-19.
And more specifically, we wanted to understand the
psychosocial impacts. "Is your family worried about getting COVID? Is your
family now worried about finances due to COVID?" And so we assess these
things across four groups. We had a non-Hispanic White parents of children who
have asthma, and non-Hispanic White parents of children who do not have asthma.
And then BIPOC parents of children who have asthma and BIPOC parents with
children who do not have asthma. Throughout the course of the study that we ran
last summer, we had about over 300 families participate. And Dr. Clawson, will
talk a little bit more about our results.
We noticed that there was no research specifically focused on understanding how the pandemic was affecting the mental health and the drivers of mental health within these [BIPOC] communities. And given our lab's focus in asthma, and COVID being a respiratory virus, we also recognize that the pandemic may have especially big impacts on BIPOC families, and especially those families who have children with asthma
Cara Nwankwo
EmbraceRace: I just want to pause just
for a moment to underscore the importance of, or one big takeaway from what
you've all said and this sort of the reference to the social ecological model
and the reference to social determinants of health, especially because even
with respect to COVID where I think probably the media have done a better job
than they typically do of bringing attention to these systemic factors. These
factors outside the control, certainly beyond behavior. We are society, as many
have noted, that tends to emphasize individual responsibility and individual
behavior.
"Why are some groups more likely to get sick? Because
they're not wearing mask. They're just not doing what they're supposed to be
doing." And what your work is doing is saying, not that the behavior
doesn't matter of course, but that even behavior itself is situated in systems
and that there are non-behavioral factors that affect certainly how groups do.
I just wanted to underline that because it's huge.
And another thing to underline, looking at asthma in
particular, you all had told us that there's an incredible percentage of folks
that have asthma.
What are the
statistics on children with asthma in this country, and specifically BIPOC
children?
Dr. Ashley
Clawson: Sure.
I'm happy to. Overall, asthma is the most common chronic medical condition
among kids. Nationally it's about 7%. But with asthma, we see the same patterns
that we see with COVID and that's that there are clear racial disparities and a lot of the same
social determinants of health that impact COVID risk also impact pediatric asthma.
Where kids are living. If they're living in housing that has mold, or has other
exposure to allergens, et cetera, or pollutants, air pollution, exposure to
early poverty and crime. These things all work together to put kids at risk for
asthma, but also other health conditions. And we see that, for example some of
the highest rates of pediatric asthma we see are among Black youth, Indigenous
youth and Puerto Rican youth.
EmbraceRace:Can you give us a sense of what those numbers are for those high
incidents of asthma populations?
Dr. Ashley
Clawson: Sure.
It depends whether we're looking at prevalence or incidence, which is sort of
new onset asthma. But if we look at nationally, let's say about 7% of kids,
which is not a small number, have asthma. We see higher rates among, let's say
for example, Black youth. And it ranges by study, where it might be at 10 to
15%. And then also, again, like I said, it's higher in Indigenous youth and
Puerto Rican youth.
And something I also want to note is it's not just that
kids have asthma and that there's these disparities by whole groups where Black
youth in general are more likely to have asthma than their non-Hispanic White
counterparts, but it's also that their asthma outcomes differ. If they have
asthma, they are going to the emergency more often or they're having more
disease and poor outcomes associated with their asthma, or they're dying from
asthma at a higher rate than their White counterparts. It's not just having it.
It's that the outcomes are less good because of the social conditions
surrounding being a BIPOC youth in the United States.
EmbraceRace: 7% and double that for
some groups.
Dr. Ashley
Clawson: And
then that will vary by geographic region too.
EmbraceRace:Can we hear about the results of the online study you conducted?
Dr. Ashley
Clawson: Sure.
As Cara said and Dr. Cole is going to bring us back with some specific
information about Indigenous communities, but for the study given we already
knew that there were disparities in asthma because of these social drivers of
health and then disparities broadly with BIPOC families. That's why we sort of
had these four groups where we're looking at the intersection of child health,
asthma and their ethnic and racial identity. For our reference group, we wanted
to compare groups, but we kind of needed a reference group. For us, that was non-Hispanic
White families with healthy children. Because we conceptualize that for those
families, they had the most privileged and likely resources and wouldn't have
the stress of having a child with a respiratory condition. We looked at the
differences between groups thinking about that as our comparison group and
social drivers of health, child mental health, and parent mental health.
When we looked at the social drivers of health, what we
saw is that our BIPOC families with healthy kids and our BIPOC families with
kids with asthma reported that they experienced more discrimination day-to-day
than the non-Hispanic White families with healthy children. And this didn't
just occur in their day-to-day life. This happened in healthcare settings. When
they were trying to seek medical care, they were being discriminated against.
But it didn't end there. What we also saw in our pattern of results is what we
conceptualized as a pattern consistent with systemic racism. And that's that
for our families, our BIPOC families, those with and without asthma, with the
worst pattern being for our BIPOC families with kids with asthma, they let us
know that during the pandemic, they had more food insecurity because of the
pandemic. They had more income loss because of the pandemic. They were having
trouble paying their bills. They were having trouble buying food, and they were
having trouble accessing the care that they needed medically. And for us,
that's a pattern of systemic racism. And I know we'll talk more about what does
this mean.
Dr. Ashley Clawson: But I can, real quick, for child mental health, are kids
being affected during the pandemic? Kids are amazingly resilient, but the
answer is yes, yes they are. Which kids? Our BIPOC kids, whether they had
asthma or not, reported that they're worrying more about their health and their
family's health. They're worrying more about their family's loss of income.
They're worried more about loss of education. They're worried more about just
COVID in general, compared to non-Hispanic White, healthy children. Now kids
with asthma, non-Hispanic White kids with asthma, they reported some COVID
related distress too. But it was a little different in that they were more
generally just worried kind of about COVID, but our BIPOC kids, they were
worried about COVID and they were worried about the fact that their family were
losing resources and they were more worried about were they and their family
going to be okay.
I think that's an important distinction. And then lastly
how are parents doing? Our parents were largely incredibly resilient. But some
important differences did come up and that's that our BIPOC families, BIPOC
families with healthy kids and BIPOC families with kids with asthma and our non-Hispanic
White kids with asthma said that they were very worried about income losses
during the pandemic compared to non-Hispanic White families with healthy kids.
Why is this important? Because kids live in systems and if parents are anxious
and worried about finances, that's going to have an impact on their own mental
health more broadly, but we also know that it affects child mental health.
Those are sort of just bullet pointed mains. And I'm happy to talk more, but we
saw differences in all areas with our BIPOC families with kids with asthma
having the worst outcomes.
What we also saw in our pattern of results is what we conceptualized as a pattern consistent with systemic racism. And that's that for our families, our BIPOC families, those with and without asthma, with the worst pattern being for our BIPOC families with kids with asthma, they let us know that during the pandemic, they had more food insecurity because of the pandemic. They had more income loss because of the pandemic. They were having trouble paying their bills. They were having trouble buying food, and they were having trouble accessing the care that they needed medically. And for us, that's a pattern of systemic racism.
Dr. Ashley Clawson
EmbraceRace: Part of what I'm hearing
Ashley is two senses in which these outcomes tend to be sort of systemically
linked. One is that they are cumulative. You have disadvantages and advantages
tending to accumulate together. And part of the reason that's true is because
they are in fact linked in many cases. The same sorts of underlying factors
that might cause a vulnerability over here are likely to cause it over here as
well. And so the same people tend to show the same pattern of outcomes. One
thing I wonder, and we have a big question really about both long-term impacts
and about solutions, and especially community based solutions. Just starting
from the long-term effects, a premise as we noted for this topic and this
webinar was that much of the country is moving on.
The vaccines are here. Most adults who want to be
vaccinated have been vaccinated at least once and so on, and for a lot of
people and entire communities, it's, "Thank goodness that's over. I can
get out again," and obviously that's wonderful for those communities. I
think a lot of us appreciate intellectually that some of these impacts after
15, 16 months of this country being in crisis around this pandemic, will be
long-term at the societal level. But I suspect that we're less clear on what
the long-term impacts will be for people and communities.
What are some
of the long-term impacts for people and communities? The sorts of problems two
years from now, we'll see the residue, if not more than that... Can you give us
some idea of what should be looking out for?
Dr. Ashley
Clawson: Absolutely.
As many amazing scholars smarter than I am have said, we are in a syndemic where it's an intersection
of the pandemic and racism. The pandemic has just widened inequities that are
already there. And if we don't do something about it, then these are only going
to get wider and lead to even larger disparities between our BIPOC and racially
minoritized families and non-Hispanic White families. We know that children and
caregivers' exposure to discrimination has long-term impacts on mental and physical
health. And it's gotten worse during the pandemic. If we don't do something,
those impacts are going to be even worse.
If we don't do something about the fact that certain
families are being exposed to higher stress because of income loss, higher stress
because of loss of social support and being worried about being able to take
care of their families, those things are going to, as we know from other
literature impact child and parent mental health, though we are at a different
stage of the pandemic, if we do nothing, these families will falter even more.
And these are already families that have been largely prohibited and oppressed.
And we have obligation to stand up now and say, things have to be done. I think
I loosely answered your question, Andrew, and then I just sort of went this
way. Feel free to redirect me.
EmbraceRace: A fuller answer would take
more time than we have I know. I wonder if in your answers you could give us
some sense, including what, Ashley Cole you're doing work on American Indians
and Alaska Natives. That's already a very diverse group we know, but if there's
some particular things that you want to highlight that you're aware of on the
solution side, that will be wonderful.
Can you give
us a sense of what American Indians and Alaska Natives communities are doing in
response to this? Just as the impacts and the effects of different communities
are somewhat different, the solutions are surely different as well.
Dr. Ashley B.
Cole: Sure.
I can speak a little bit to that. One of the multilevel solutions that has kind
of come into play is increased funding and support. The government has issued
several COVID relief bills specific to tribal communities. And so in terms of
tribal sovereignty, those funds get sent to each individual tribe. And they
decide how to use those funds. And many tribes, I can speak mostly for tribes
in Oklahoma, but also tribes across the country, have used those funds to
support their citizens. Through opening vaccination clinics, through giving additional
funds for education, for elder care. A big thing in tribal communities is we
don't want to lose our elders who are some of the knowledge keepers, some of
them who know traditional languages, as I introduced myself earlier. Sometimes
those languages get lost.
So, really giving increased support across generations and
at different levels to help keep community members going. And one thing that I
do kind of want to point out and I'm sort of back channeling a little bit and
then coming back, is that American Indian/Alaska Natives in particular were at greater risk depending on the numbers
you see, but anywhere from one to three to four times higher rates of
contracting COVID, being hospitalized for more severe symptoms related to COVID,
and also mortality. And so sort of thinking about in the community level,
tribes, a lot of them are leading the way and vaccinations and taking care of
their tribal members and not just specific to tribal members. A lot of the
tribal communities and health care organizations have opened up vaccination
clinics to all community members, regardless of tribal enrollment status.
I think those are just a few examples and kind of thinking
about this syndemic that Dr. Clawson mentioned where a lot of tribal
communities initially received fewer resources, less PPE, less funding. Tribal
members were contracting rates of COVID at higher rates. And then kind of turn
that around. The CDC recently released a graphic showing that vaccination rates
across ethnicity and race and American Indian/Alaska Natives have the highest
rate of vaccinations so far. I think we can kind of use this also as an
opportunity to learn from what are communities doing who maybe don't have that
individual mindset, who have more of that communal mindset: "Let's take
care of each other." I kind of derailed, I'm sorry if I didn't answer your
question Andrew.
EmbraceRace:I'm thinking about the distinction, the kinds of solutions and the
circumstances of people on tribal territories. At least physical territory
versus the members of tribal nations who are not, or people who may be unenrolled
for that matter but aren't in tribal territory. Do we know anything about the
distinction and how people are doing?
Dr. Ashley B.
Cole: Yeah,
that's a good question. I actually saw an article that came out today that said
that we really don't know a lot because it's an issue in terms of if you're a
tribal citizen where you get health care. You might go get healthcare at Indian
Health care Services, IHS. You might receive healthcare from a tribal clinic.
There's urban tribal clinics, or you might have insurance and receive
healthcare from the hospital. There is concerns in terms of the data. We're not
really sure. It's hard to track essentially where folks are getting healthcare
and especially if they're, for example, they might have a specific condition,
they might have asthma where they need to go see a specialist and then they're
referred out of the tribal health care system. It's hard to track and that's a
good point though, Andrew, it is going to vary by geographic location. And if
someone lives in close proximity or lives on a reservation near a healthcare
facility versus how far away they are, if they're further away.
EmbraceRace: Yeah. I'm thinking about
how early on when we started tracking or not tracking race ethnicity data, for
example, in the States, and there's still huge gaps in what we know by race
ethnicity. And that was true for so long. And that's 50 States who are doing it
differently in a hodgepodge of ways. Over 500 tribal nations that the USA
government recognizes. I just can't imagine and many of them are really
under-resourced. The state of the data must be really, really challenging.
Cara, what's
your thinking? What can you tell us?
Cara Nwankwo: We are talking a lot about
these multi-level influences and so it makes sense that the solutions or the
interventions will also be multilevel. There is a lot of information that we looked
at. There's a lot of things going on to address, but I wanted to focus in, on
mental health, on specifically child mental health of Black youth. And so when
we're looking at this, taking it from the societal standpoint, are there
universal laws that are in place and policies to continuously fund community
mental health centers? Are there universal mental health screenings in schools
and are doctor's offices really trained to meet families where they're at? Are
we critically looking at the laws that are already in place that are
discriminatory and how can we change those to be more equitable for all people?
And then at the community level, what supports are already
available in your community? Are there funding for community mental health
programs, funding for school-based psychological services, again, wanting to
meet families where they're at? Is there a school psychologist that can pull a
kiddo aside and do some brief intervention if they're noticing that they're
struggling with something?
And then taking it a step further in to the family level.
Parents and many adults on this call, I'm sure we all have people young people
that are in our lives, whether it be kids or family members that we have
influence over, are we doing mental health check-ins with them? Are mental
health conversations a regular part of your household and a norm in your
household, especially for Black and Brown children? Are you having
conversations with them about their identity, about their racial identity,
about what that looks like living here in America? Those types of conversations
are known to help foster self-esteem and a sense of pride in who they are,
which is linked to positive mental health outcomes.
Kids generally learn through observation. And so as an
adult in the household, are you setting a good example of self-care? Are you
engaging in family value based activities, whether that be family meal times or
physical activity, going to the park, seeking social intangible support from
your other family members and community family members. Again, we know that
social support is super big and important in Black and Brown communities and
it's linked to improved outcomes.
And then on the personal level thinking about the kids,
are they engaging in their own value based activities? We know that things are
beginning to open up a little bit more. Are they hanging out with their
friends, either virtually or in person, whichever way is safe for them? Are
they engaging in their own things that bring them joy? Are they learning ways
to check in with their own mental health and kind of noticing changes in that? And
if they are, do they have people around them that they feel comfortable
reaching out to for support? Do they have access to mental health mobile
applications or books, or even engaging in therapy? These are just some of the
ideas that we've come up with to support child mental health at the different
levels. And we put together this graphic that is huge with lots of
recommendations across all levels for a lot of the findings that we found in
our paper. And we're not going to show that today, but we will link it either
where this EmbraceRace webinar will be or on our lab website. This is just a
little snippet of what a multi-level intervention may look like to support
child mental health.
I'm sure we all have people young people that are in our lives, whether it be kids or family members that we have influence over, are we doing mental health check-ins with them? Are mental health conversations a regular part of your household and a norm in your household, especially for Black and Brown children? Are you having conversations with them about their identity, about their racial identity, about what that looks like living here in America?
Cara Nwankwo
EmbraceRace: Thank you so much. Here's
a question that came in.
"My Black
Indigenous grandchild whose family is working class and who attends a majority White
middle upper class school demonstrated a higher preoccupation with following
COVID rules than her White counterparts and other middle-class children. School
did not directly attend to that."
We saw this as
well, just even in our own family. BIPOC kids who don't feel invulnerable, who
might have more experience with other members of the community falling ill to
COVID or to other things. Did this come up in your study?
Dr. Ashley
Clawson: It
absolutely was in that kids were, they were in sort of in general reporting more
distress and worry about COVID, but also at higher rates than the White kids,
they were specifically worried about the health of their family. They were
specifically worried about whether they would have enough money and food. I
think kids are definitely more aware and hear what's going on and from our
study and what this caregiver said, yes, they noticed, they noticed and they
are hearing my community, my family is more at risk and are worried about
additional things that indeed do contribute to health in their own life.
EmbraceRace: I'm thinking about your
training in pediatric psychology and what we've learned about the increasing
integration of what we know about adverse childhood experiences into medical
practice, including very much with pediatricians, and the long-term effects of
those adverse experiences. I think about the kids who came of age during 9/11
or during the Reagan years or during Vietnam, or during the Great Depression.
These are major events that shaped the mental apparatus of entire generations.
From your platforms
as pediatric psychologists, are we going to see a generational impact or
long-term effects for kids of a certain age having gone through COVID-19?
Cara Nwankwo: I think that I can't speak
to say for sure, but I definitely think that there are going to be some
long-term effects for kids, but we do know that kids are resilient. We know
that there are things that we've found in research, whether it be mentorship or
community resources that can really change the trajectory of these impacts or
the negative trajectory of what's going on. I think that yes, things could be
bad, but also we have the knowledge and the resources to change that, it just
needs to be kind of put into place.
EmbraceRace: I wonder if there might
actually be some positive impacts with respect to empathy, for example. As
we've all stressed, the impacts are very different by race, class, geography,
all sorts of things. Still it's hard to think of something else that's happened
in this country that's affected people in some meaningful way as widely as this
one. A lot of people being home and being so broadly affected, it means that a
lot more people are aware for example, of the differential racial impacts of
this then who would have known even about the recession of 2008 and 2009 for
example. The response to George Floyd.
Is it plausible
to think that there might be some kids of relative privilege, whatever their
racial identity, who might actually have some greater awareness now than they
would otherwise have had about the racial and class impacts of something like
this? I'm looking for a silver lining.
Dr. Ashley
Clawson: We
already heard about some resilience. I think I absolutely agree with Cara that
this is a stressor. There's no way around, it's been a stressor for all of us
and more for some, but I think the importance of resilience and being a turning
point, as Cara mentioned, is critical. And that they're not set trajectories. There's
so much and so much space we have to promote that resilience and that silver
lining Andrew and that hope. And it's us taking action at all the levels that
Cara talked about. Talk critically and evaluating and saying, "These are
the racist policies." Creating anti-racist policies and supports across
the board and communities at our national level.
But there's also this incredible thing that's just called ordinary magic. This is again by someone
that is smarter than me. I didn't come up with it, but it's small things we can
do that support resilience in kids who've been exposed to extreme stressors
such as child abuse and neglect. And that with these supports, with having warm
adult loving relationships in their life, with having people that show them
that they care, giving them the space to talk, that those things make huge
differences and the trajectories of kids. Now is the time to take action, and I
think that hopefully this prompts more of us to take responsibility and action to
make changes across all system levels, but also know that we can do small
things for all the kids in our lives to show them that we care, we see them, we
care and just being there to be that warm supportive person and these small
things add up for kids. And we know that these small things make a difference
to help kids be resilient in the face of all kinds of stressors, but it's our
responsibility, not theirs.
EmbraceRace:There are also major differences in the numbers of people getting COVID
vaccines by race and ethnicity as was mention. What relationship might you see
if any, between access to, and or willingness to getting a vaccine and mental
health in different communities?
Dr. Ashley B.
Cole: I
think that definitely plays a role. And I think taking into context historical
experiences. There have been documented many examples of racism and terrible care by
medical professionals and researchers to certain communities of color. I think
just having that in mind in terms of medical mistrust and how that might
contribute to some people's, particularly individuals who identify as BIPOC, it
might contribute to their hesitancy about getting the vaccine or about really
sort of questioning the medical information that's coming out. I think that
probably plays a role.
And I've also sort of on the flip side of that seem some
really amazing public health campaigns by for example, Indigenous doctors, Black
physicians who have said, "These are the reasons I'm getting the vaccine
and here's why," and really trying to shift that narrative. But I do think
that historical mistrust is something to keep in mind. And it's an important
consideration.
EmbraceRace:The new CDC guidelines regarding masks seem to completely invisibilize
small and elementary children who are not vaccinated. The
National Nurses United urges the CDC to revise
its "dangerous guidelines." Can you speak to how this is going to
impact poor and working class BIPOC communities?
Dr. Ashley
Clawson: And
I can fully appreciate that. The question being, will this, could this, the new
CDC mask guidance have particular harmful or maybe unintended consequences for
BIPOC communities and children? I think the answer has to be yes. Because I think
there are still inequities that are making it where not all communities have
the same access to vaccines. Kids in general, they're not eligible to vaccines,
but if the adults in the community don't have access to the vaccines, then more
adults in the community are at risk for being infected with the virus.
I think for some communities, this takes away a level of
protection without having the resources or if I may go back to my diagram, the
right "bike" to support optimal health for that community. And it's
assuming that one policy is going to be a good fit for promoting health in all
communities, but that's not what we've seen in. And therefore we don't see any
reason why this would be different, that we're trying to do a one size fits
all. And I don't think that is going to be likely the support optimal health
for our BIPOC communities.
Dr. Ashley B.
Cole: It
makes me think of some of the reasons that we kind of discussed a little bit
earlier, but some of the social determinants of health of why BIPOC
individuals, adults in particular, are at more risk for getting COVID. A big
piece of that is employment where they're employed or potentially overly
employed as essential workers in places like healthcare facilities, grocery
stores, public transportation, interacting with a lot of people and then
thinking about yeah, their kids at home, how does that affect them? And that's
not the same level of protection as someone who can fully work from home or
work remotely and stay home with them. And, yeah, I think I agree with Dr.
Clawson that, that one size fits all policy is probably going to have some
negative impacts down the road. And it's hard to know what exactly what those
will be, but it seems likely.
EmbraceRace:"How can we best support ourselves and our children through time? The
more love the better. How can we best love ourselves and our children?"
Are you
seeing any self care strategies for families that you can recommend in addition
to what you've already said. Or what do you do with your family?
Dr. Ashley
Clawson: I
can jump in. And I will say what we also did is we did a work on an action guide
that provides lots of resources for parents, for healthcare providers, for
educators. We have lots of resources for evidence-based or screeners that we've
research tells us work where you can do screeners of assessing your own mental
health, or if worried about your children, screeners for assessing mental
health. Lists of apps for how do you find out about which therapies work? How
do I find a therapist and other resources? How to do anti-racist training. All
these kinds of different things.
But coming back to your other question. What do we do? We
take it day by day. I think we try to give ourselves grace as some days are
better than others. I think we do a lot of value based activities in terms of
things that are important to us and our North star. We really enjoy being
outside spending time together. Giving social support and seeking it is very
important for us. I think a big thing, and Cara mentioned this is knowing that,
there are self-help resources out there that we can talk about. Melissa knows
this. I'm a huge proponent for acceptance and commitment therapy. There's
self-help books out there on that. And you can do therapy for your child or
your family if you're concerned. And I do acceptance and commitment therapy
strategies on myself. My husband and I downloaded the book and we do it
together. There's specific stuff for acceptance and commitment therapy as it
relates to parenting. And I think for everybody it's different and for
community strengths, I think that's another thing. That is a big part for many
of us. Cara and Dr. Cole, did you want to elaborate?
Cara Nwankwo: I just wanted to add, in addition
to all of those things that Dr. Clawson just talked about, I do that, but I
also started going to my own therapist during this time. I realized that it was
a tough time for me being a Black woman and living in Oklahoma with the
pandemic and all the racism and everything going on in the media and in America
and really noticed that I needed some extra support. And I think that it's
important for me to be open about this, because like I mentioned earlier, it's
very stigmatized in my community, being a Black woman and also being a Nigerian
American woman, even more so stigmatized within that community.
And I think that the more people I can be open about it if
they're comfortable to help encourage that, it's okay if you need some
additional help, it's okay if you want to see somebody and talk about what's
going on, because it's tough. It's been a rough 15, 16 months for everybody.
And there are people out there that are there to support you through that. And
so that's one way that I've been engaging in self-care during this time.
EmbraceRace: Cara, we're just at time,
but I wanted to squeeze in one more question actually for you. We know that as
you said, there is in many communities, such stigma against getting mental
health support. I think you do some volunteering and other things in clinical
settings. I don't remember if you do it in mental health settings, but I know
that you're very much in proximity to community members, frontline folks who
are working with community.
Is there a
loosening and easing of some of the stigma against mental health support in
light of what we see and the demands on people?
Cara Nwankwo: I think so. I like to
think that this is outside of my little bubble, but I do think that the stigma
across different communities of color is becoming less for forgetting mental
health treatment and support. It's becoming much more normalized. And I think
with the increase of people of color in this field and clinical work and
clinical settings and in research has really helped with that. I've had clients
say, "I was relieved when I saw a person of color was going to be my
therapist." And those messages to me are just so important because I know
that by me doing the work that I'm doing, it's helping other people and making
them feel a little bit more comfortable. "Oh, she looks like me or she
might understand things a little bit differently." And so I'm hoping that
as we continue to increase representation within this field, it's just going to
become less stigmatized.
EmbraceRace: Thank you. I just have to
say, you mentioned you are Nigerian American, some folks will know that
Nigerian Americans are the most highly formally educated group of people in this
country. And having known of you, peers and folks younger, who talk about the
pressure of achieving and how one is to achieve, not to say, of course that
everyone in the Nigerian American community follows scriptures in this way. But
we're so glad to have had you hear, Cara will be rooting for all of you and
certainly Cara, as you finish your doctoral program and go on to mentor that
next generation.
Thank you so much for doing this work. Not only the
survey, but for all that, you're all doing. That's an immense contribution.
Thank you for spending some time and sharing your insights and wisdom.
Dr. Ashley Clawson is an Assistant Professor of Psychology at Oklahoma State University and a member of the Center for Pediatric Psychology, the Stephenson Cancer Center, and the Health Promotion Research Center. Dr. Clawson received her PhD in…
More about Ashley >
Contributor
Ashley Cole
Dr. Ashley B. Cole is an enrolled tribal member of the Citizen Potawatomi Nation of Oklahoma. Dr. Cole earned her PhD in Clinical Psychology. She is currently an Assistant Professor in the Department of Psychology at Oklahoma State University, and…
More about Ashley >
Contributor
Cara N. Nwankwo
Cara Nwankwo is a third-year clinical psychology doctoral student at Oklahoma State University specializing in pediatric psychology. She is a graduate student in the Child & Family Health Promotion Lab and is an active leader in the lab’s…
More about Cara N. >
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A conversation about why Black and Latinx communities are suffering disproportionately, why this pattern of racialized vulnerability is so painfully familiar, and what we might do to disrupt it.
A conversation with Cynthia Choi and Manju Kulkarni about how "COVID-19 racism" is reshaping political sensibilities within the very diverse Asian American community and between that community and other communities of color.
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